We just surpassed the 6-week mark on the specific carbohydrate diet. In summary, we think it is working for Cyrus and we will continue on the diet. He has energy, is happy, likes what he's eating so far, and is mostly symptom free. I still think there is something we give him (probably this particular mayonnaise) that irritates his GI tract, but we're learning and documenting his food intake and symptoms.
It is apparent that Cyrus feels as good now as any time in the last 10 months. The time that he was on medications was absolutely rotten (for him and us) and I don't know how I'll ever voluntarily submit him to it again. Of course, I'm always the skeptic and will be vigilant for signs that things are going wrong with the diet. However, I've observed enough progress both symptomatically and in his overall attitude to think that inflammatory bowel disease is affected by what one eats. (despite what the ccfa.org official website advocates)
CCFA.org kind of ticks me off with the message they put out. Every corner of the foundation's website is littered with statements like, "no matter what, take your medications". I get it, to some extent. But to put out a blanket statement of guilt for not taking medicine (crappy as they are) seems wrong...
The SCD is no picnic, I won't lie. Cooking, cooking, cooking,... if you don't like cooking, it ain't for you! Planning every single meal of every single day is a chore. Going out to eat is not an option (yet) with the kids. Every so often, we put the kids to bed and bring home some Thai take out or pizza! On the bright side, we spend less money on going out to eat -- and the kids were never really that fun to eat out with anyhow!